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Studies

Bach et al. (1991): study US 1989

Publication

Author(s):
Bach, J.R.; Campagnolo, D.I.; Hoeman, S.
Title:
Life Satisfaction of Individuals with Duchenne Muscular Dystrophy Using Long-Term Mechanical Ventilatory Support.
Source:
American Journal of Physical Medicine & Rehabilitation, 1991, Vol. 70, 129 - 135

Investigation

Public
Duchenne Muscular Dystrophy patients and controls, USA, 1985
Sample
Non-probability purposive sample
Respondents
N = 335
Non Response
Assessment
Questionnaire: Paper & Pencil Interview (PAPI)
Mailed questionnaire

Happiness Measure(s) and Distributional Findings

Full text:
Self report on single question:

We have talked about various parts of your life, now I want to ask you about your life as a whole. How satisfied are you with your life as a whole these days.....?
7  completely satisfied
6
5
4  neutral
3
2
1  completely dissatisfied
Classification:
O-SLW-c-sq-n-7-a
Author's label:
Satisfaction with life in general
Remarks:
patients:
      1         2         3         4         5         6         7
%  2.5     2.5      7.5      17.5   35       26.3   8.8
Ms patients=6,57     SDs=2,18

controls:
      1          2        3          4        5         6         7
%  0.0      3.5      5.0      8.9     30      39.4    13
Ms controls=7,3     SDs=1,97
Page in publication:
130
Observed distribution
Frequencies
1: 1.3%,   2: 3%,   3: 6.3%,   4: 13.2%,   5: 32.5%,   6: 32.9%,   7: 10.9%   (total 100.1%)
Summary Statistics
On original range 1 - 7 On range 0-10
Mean:
5.15 6.92
SD:
1.25 2.08
Full text:
Self report on single question:

Here are some words and phrases we would like you to use to describe how you feel about your present life.....
1 miserable                                              
2
3
4
5
6
7  enjoyable

Item in: Campbell's Semantic Differential Scale
Classification:
M-PL-c-sq-n-7-b
Author's label:
Semantic differential scale of general a
Remarks:
Patients:
       1          2        3          4          5          6          7
%   1,3       5,0     7,6       31,7    17,8    20,3    16,5
Ms=6,43    SDs=2,43

controls:
     1         2          3          4          5         6          7
%  0,0     2,8        2,8      10,3    21,0    34,0     29,3
Ms=7,8     SDs=2,05
Page in publication:
131-132
Observed distribution
Frequencies
1: 0.7%,   2: 3.9%,   3: 5.2%,   4: 21%,   5: 19.3%,   6: 27.1%,   7: 22.9%   (total 100.1%)
Summary Statistics
On original range 1 - 7 On range 0-10
Mean:
5.27 7.12
SD:
1.35 2.24
Full text:
Self report on single question:

Here are some words and phrases we would like you to use to describe how you feel about your present life.....
1 disappointing                                            
2
3
4
5
6
7  rewarding

Item in: Campbell's Semantic Differential Scale
Classification:
M-PL-c-sq-n-7-c
Author's label:
Semantic differential scale of general a
Remarks:
Patients:
        1          2          3          4          5          6          7
%     5,0      1,3       7,5      42,5    20,0     12,5    11,3
Ms=5,9    SDs=2,35

controls:
         1          2           3          4          5          6          7
%      0,4      0,8       2,7       10,6     20,7    17,2     27,3
Ms=7,93        SDs=1,88
Page in publication:
131-132
Observed distribution
Frequencies
1: 2.7%,   2: 1%,   3: 5.1%,   4: 26.5%,   5: 20.4%,   6: 14.9%,   7: 19.3%   (total 89.9%)
Summary Statistics
On original range 1 - 7 On range 0-10
Mean:
5.15 6.92
SD:
1.27 2.12

Correlational Findings

Author's label Subject Description Finding Duchenne muscular dystrophy desease Self-perceived chronic illness
Congenital musculoskeletal deformities (q68)
Tracheostomic ventilation Breathing problems
Ventilator assistance